Resources for Schools

Discover our library of amazing resources and a supportive community to help you thrive in nursing.

Webinar Recordings

GNNRD Videos

GNNRD Roundtable Presentations

Roundtable Plenary Session 3 - Rare Disease Education: Time for a Change - Birute Tumiene

Roundtable Plenary Session 2 - A National Rare Disease Nurse Network - Michelle Conway

Roundtable Plenary Session 2 - Global Network for Rare Diseases - Durhane Wong-Rieger

Roundtable Plenary Session 1 - Impact of Realising the Vision - Saumya Jamuar

Roundtable Plenary Session 1 - Nursing in RUD Care: Global Perspectives - Rachel Yang

Roundtable Plenary Session 1 - Co-designing a Shared Vision for the Wellbeing of People with RUD - Gareth Baynam

Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 3

Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 2

Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 1

Medscape

Canadian Organization for Rare Disorders

https://www.raredisorders.ca/

Indian Organization for Rare Diseases

https://www.rarediseases.in/

Rare Voices Australia

https://rarevoices.org.au/

APARDO – Asia

https://www.apardo.org/

EURODIS – Europe

https://www.eurordis.org/

Orphanet patient organisations

https://www.orpha.net/

National Organization for Rare Disorders – USA

https://rarediseases.org/

Rare Diseases International

https://www.rarediseasesinternational.org/