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Discover our library of amazing resources and a supportive community to help you thrive in nursing.
Webinar Recordings
GNNRD Videos
GNNRD Roundtable Presentations
Roundtable Plenary Session 3 - Rare Disease Education: Time for a Change - Birute Tumiene
Roundtable Plenary Session 2 - A National Rare Disease Nurse Network - Michelle Conway
Roundtable Plenary Session 2 - Global Network for Rare Diseases - Durhane Wong-Rieger
Roundtable Plenary Session 1 - Impact of Realising the Vision - Saumya Jamuar
Roundtable Plenary Session 1 - Nursing in RUD Care: Global Perspectives - Rachel Yang
Roundtable Plenary Session 1 - Co-designing a Shared Vision for the Wellbeing of People with RUD - Gareth Baynam
Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 3
Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 2
Connecting Nurses Globally: A Roundtable in RUD – Plenary Session 1
Medscape
Canadian Organization for Rare Disorders
https://www.raredisorders.ca/
Indian Organization for Rare Diseases
https://www.rarediseases.in/
Rare Voices Australia
https://rarevoices.org.au/
APARDO – Asia
https://www.apardo.org/
EURODIS – Europe
https://www.eurordis.org/
Orphanet patient organisations
https://www.orpha.net/
National Organization for Rare Disorders – USA
https://rarediseases.org/
Rare Diseases International
https://www.rarediseasesinternational.org/